ode to the pud

Ode to the milky bar pudd
need i say more xx

Not a severe disabilty

We applied for a blue badge for Aaron quite a few weeks ago and finally got the reply today and it was rejected as they don't give out to autism as they need the parking spaces for seriously disabled ppl, (was baffled at that as we know someone who has one as there child is deaf). we are going to tribunal as we don't get high rate care, i am going to start video recording all the night care we do, but was told by someone local to forget going for high rate as it is not given for autism.

Why is autism a 2nd class disability, I want the ppl behind the desks come and see what we have to do, we don't get to sit down have a coffee when my son cares for himself as apparently he is able.

I want everyone to come and live our life for even 2 hours and see just how severe a disability it is.

and lol have bought more xmas pressies today, how sad is that lol

the simple things

Its the simple things in life that make us happy, Last night i spent quite a while laughing and watching Aaron, he was surronded by his many toys and books (far too many toys ) yet it was the simple things that Aaron was having fun with.

My lovely neighbour had given Aaron some balloons and he was having so much fun with 2 tied together running up and down our very small house. The only time that he stopped was only to watch the funny bit on cats and dogs and laughing before the funny bit comes on as he knows it so well.

But it was a simple toy that upset him so much this morning he had lost his little squiral it took me 15 minutes to find it with a very sad little boy looking so lost. Have posted this pic as in his hand is that bloomin squiralxx

sat staring

I am sat here staring at my first blog and my head is empty, but full at the same time wondering where to start our life over the past 8 and a half years has not been an easy journey as my son has many challenges that makes our life non stop. I keep saying to myself that i would not change anything in my life, but i would be lying i would change alot one thing i would change is Autism and ADHD i hate everything about it, i hate that my wonderful 8 year old should be having a care free life going on sleepovers mates coming by knocking and asking for Aaron to come and play. But my son's life is taken over by this horrible disability Autism he is not carefree and happy he is a very frustrated little boy that i can't make him happy and when he self harms my heart breaks in two, i can't do anything to help him.

I would change the fact that i have never been called mummy that i can't read him a bedtime story, comfort him, play with him be his mummy and not his carer.

This blog will be more positive this is just what is going round my head at the moment bearing in mind i have been up since 5am with yet another sleepless night with Aaron.