We applied for a blue badge for Aaron quite a few weeks ago and finally got the reply today and it was rejected as they don't give out to autism as they need the parking spaces for seriously disabled ppl, (was baffled at that as we know someone who has one as there child is deaf). we are going to tribunal as we don't get high rate care, i am going to start video recording all the night care we do, but was told by someone local to forget going for high rate as it is not given for autism.
Why is autism a 2nd class disability, I want the ppl behind the desks come and see what we have to do, we don't get to sit down have a coffee when my son cares for himself as apparently he is able.
I want everyone to come and live our life for even 2 hours and see just how severe a disability it is.
and lol have bought more xmas pressies today, how sad is that lol
I totally agree,Chloe has physical,loads of medical stuff but by far the hardest thing of all to deal with is the ASD. It seems like there is very little support for famililies with Children with ASD.
ReplyDeleteMy friend son has quad cp, I am not in anyway knocking them but they get soooo much support and restbite yet they get a full nights sleep,can push him around anywhere thats wc acsessable,sit down as a family for dinner ect ect.Our whole lives are struggleing with the unpredictsble behaviour,sticking to routine,not being able to get ant sitters as of the violent behaviour.Keep fighting Karen and YES you can get high rate dla and a blue badge.
It is a fight isnt?! i havent applied for the blue badge yet or the mobility part of the DLA, but my daughter does get higher rate care. So it is possible. Thanks for adding me on face book :)
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